thods Using mail and telephone survey modalities, we approached 1372 patients treated with peritoneal dialysis or home hemodialysis for participation. Using the results from completed surveys, we evaluated item calibration by assessing item floor and ceiling effects. We tested three sets of composite scores and used factor analysis to assess model fit for each. We evaluated associations of composite scores with global ratings and separately with patient and dialysis facility characteristics. Finally, we measured test–retest reliability in patients who completed the survey at two separate time points. Results Overall, 495 eligible patients completed at least one survey (response rate 36%). Of these, 49 completed the survey in Spanish and 61 completed a second survey within 30 days. We did not detect significant floor or ceiling effects, except for one item that demonstrated >90% responses at the top response option. Analyses supported one 12-item composite scale with high internal consistency reliability: Quality of Home Dialysis Care and Operations (Cronbach alpha=0.85). This scale strongly correlated with overall staff rating (r=0.73) and overall center rating (r=0.70). Patient demographic and dialysis facility characteristics were not consistently associated with composite scale scores or overall staff or center ratings. Intraclass correlation coefficients in the test–retest population were 0.74 for the Quality scale, 0.88 for overall staff rating, and 0.90 for overall center rating. Conclusions The Home Dialysis Care Experience survey is a 26-item measure that includes one composite scale and two global rating scores and is an informative tool to evaluate patient experience of care for home dialysis....

中文翻译：

---

患者报告的家庭透析体验测量的评估和测量特性

方法 通过邮件和电话调查方式，我们接触了 1372 名接受腹膜透析或家庭血液透析治疗的患者以寻求参与。利用已完成调查的结果，我们通过评估项目下限和上限效应来评估项目校准。我们测试了三组综合得分，并使用因子分析来评估每组的模型拟合度。我们评估了综合评分与全球评级的关联，并分别与患者和透析设施特征的关联。最后，我们测量了在两个不同时间点完成调查的患者的重测可靠性。结果 总体而言，495 名符合条件的患者完成了至少一项调查（答复率为 36%）。其中，49 人用西班牙语完成了调查，61 人在 30 天内完成了第二次调查。我们没有检测到显着的下限或上限效应，除了一项在顶部响应选项中显示 >90% 的响应之外。分析支持一种具有高内部一致性可靠性的 12 项综合量表：家庭透析护理和操作的质量（Cronbach alpha = 0.85）。该量表与员工总体评分 (r=0.73) 和中心总体评分 (r=0.70) 密切相关。患者人口统计和透析设施特征与综合量表评分或总体员工或中心评级并不一致。重测人群的组内相关系数（质量量表）为 0.74，员工总体评分为 0.88，中心总体评分为 0.90。结论 家庭透析护理体验调查是一项包含 26 项的衡量标准，包括一个综合量表和两个总体评分，是评估患者家庭透析护理体验的信息丰富的工具。