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"I wish I knew then what I know now" - pain science education concepts important for female persistent pelvic pain: a reflexive thematic analysis.
Pain ( IF 7.4 ) Pub Date : 2024-03-06 , DOI: 10.1097/j.pain.0000000000003205
Amelia K. Mardon 1, 2 , K. Jane Chalmers 1, 2 , Lauren C. Heathcote 2, 3 , Lee-Anne Curtis 1 , Lesley Freedman 4 , Rinkle Malani 5 , Romy Parker 2, 6 , Patricia B. Neumann 1 , G. Lorimer Moseley 1, 2 , Hayley B. Leake 1, 2
Affiliation  

Pain science education (PSE) provides people with an understanding of "how pain works" grounded in the biopsychosocial model of pain; it has been demonstrated to improve outcomes in musculoskeletal pain conditions. Preliminary evidence suggests PSE may be effective for female individuals with persistent pelvic pain, but how the content of PSE needs to be modified for this group remains to be determined. A reflexive thematic analysis of qualitative data was performed to identify PSE concepts that female individuals with persistent pelvic pain consider important and why. Twenty individual, semistructured interviews were conducted with adult females who had engaged with PSE and had self-identified as having "improved" pelvic pain. Most participants had been diagnosed with endometriosis (n = 16). Four themes were generated capturing PSE concepts considered important by female individuals with "improved" pelvic pain: (1) "A sensitised nervous system leads to overprotective pain" validated their pelvic pain as being real; (2) "Pain does not have to mean the body is damaged (although sometimes it does)" provided reassurance that pelvic pain does not mean their condition is worsening; (3) "How I think, feel, and 'see' my pain can make it worse" enabled participants to find optimal ways to manage their pain; and (4) "I can change my pain… slowly" provided hope that pelvic pain can improve and empowered them to pursue pain improvement as a viable goal. This study generated 4 PSE learning concepts that were important to female individuals with improved pelvic pain and may be incorporated into PSE curricula for female individuals with pelvic pain.

中文翻译:

“我希望当时我知道我现在所知道的”——疼痛科学教育概念对女性持续性骨盆疼痛很重要:反射性主题分析。

疼痛科学教育(PSE)以疼痛的生物心理社会模型为基础,让人们了解“疼痛如何发挥作用”;它已被证明可以改善肌肉骨骼疼痛的结果。初步证据表明 PSE 可能对患有持续性骨盆疼痛的女性个体有效,但针对该群体需要如何修改 PSE 的内容仍有待确定。对定性数据进行反思性主题分析,以确定患有持续性骨盆疼痛的女性个体认为重要的 PSE 概念及其原因。对 20 名参与过 PSE 并自认为盆腔疼痛“改善”的成年女性进行了单独的半结构化访谈。大多数参与者被诊断患有子宫内膜异位症(n = 16)。生成了四个主题,捕捉了“改善”盆腔疼痛的女性个体认为重要的 PSE 概念:(1)“敏感的神经系统导致过度保护性疼痛”验证了她们的盆腔疼痛是真实的;(2)“疼痛并不一定意味着身体受损(尽管有时确实如此)”,让人们确信骨盆疼痛并不意味着他们的病情正在恶化;(3)“我如何思考、感受和‘看到’我的疼痛会使情况变得更糟”使参与者能够找到控制疼痛的最佳方法;(4)“我可以慢慢地改变我的疼痛”提供了骨盆疼痛可以改善的希望,并让他们能够将改善疼痛作为一个可行的目标。这项研究产生了 4 个 PSE 学习概念,这些概念对于改善盆腔疼痛的女性个体非常重要,并且可以纳入针对盆腔疼痛女性个体的 PSE 课程中。
更新日期:2024-03-06
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