Globally, there is a growing acknowledgment of Indigenous Peoples’ rights to control data related to their communities. This is seen in the development of Indigenous Data Governance standards. As health data collection increases, it’s crucial to apply these standards in research involving Indigenous communities. Our study, therefore, aims to systematically review research using routinely collected health data of Indigenous Peoples, understanding the Indigenous Data Governance approaches and the associated advantages and challenges. We searched electronic databases for studies from 2013 to 2022, resulting in 85 selected articles. Of these, 65 (77%) involved Indigenous Peoples in the research, and 60 (71%) were authored by Indigenous individuals or organisations. While most studies (93%) provided ethical approval details, only 18 (21%) described Indigenous guiding principles, 35 (41%) reported on data sovereignty, and 28 (33%) addressed consent. This highlights the increasing focus on Indigenous Data Governance in utilising health data. Leveraging existing data sources in line with Indigenous data governance principles is vital for better understanding Indigenous health outcomes.

在全球范围内，人们越来越认识到原住民有权控制与其社区相关的数据。这可以从本土数据治理标准的制定中看出。随着健康数据收集的增加，将这些标准应用于涉及土著社区的研究至关重要。因此，我们的研究旨在系统地回顾使用常规收集的原住民健康数据的研究，了解原住民数据治理方法以及相关的优势和挑战。我们检索了 2013 年至 2022 年研究的电子数据库，筛选出 85 篇文章。其中，65 项 (77%) 涉及原住民参与研究，60 项 (71%) 由原住民个人或组织撰写。虽然大多数研究 (93%) 提供了伦理批准细节，但只有 18 项 (21%) 描述了原住民指导原则，35 项 (41%) 报告了数据主权，28 项 (33%) 涉及同意。这凸显了在利用健康数据方面对本土数据治理的日益关注。根据土著数据治理原则利用现有数据源对于更好地了解土著健康结果至关重要。