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P036 Missing vital steps: why does my rheumatology team never speak to me about exercise?
Rheumatology ( IF 5.5 ) Pub Date : 2024-04-24 , DOI: 10.1093/rheumatology/keae163.078
Ailsa M Bosworth 1 , William J Gregory 2
Affiliation  

Background/Aims UK Rheumatology services are stretched. Rollout of Patient Initiated Follow Up and pressure on job plans/clinic templates mean people with inflammatory arthritis (IA) may spend less time with their rheumatology team. An important but insufficient aspect of care in people with IA is empowering them to acquire good understanding of their disease and building their ability to deal effectively with the practical, physical and psychological impacts of it. Ability to self-manage in IA represents an essential component of care beyond drug therapy, but barriers to implementation of education in self-management exist. Surveys show that rheumatology Healthcare Practitioners (HCPs) don’t know how best to support patients becoming more physically active. Research demonstrates that people with IA have multiple barriers to undertaking regular physical activity (PA) or exercise, including physical limitations, reduced mobility, fatigue, also lack of confidence and not knowing what to do, fear of embarrassment, injury or making symptoms worse, a lack of professional input, advice and resources, inaccessible facilities and financial costs. Methods To address these issues in those living with IA, the National Rheumatoid Arthritis Society (NRAS) collaborated with experts in PA and exercise to create a module on this topic to include in their e-Learning programme, SMILE-RA. The module included: • science behind the research in lay terms • role of physiotherapists (both specialist rheumatology physios and community-based physios) • barriers and facilitators to exercising • goal setting • types of exercise • stories from people with RA inspired by exercise NRAS wanted to provide free resources for people to use who may struggle with exercise due to loss of mobility/function who may lack confidence to exercise. In addition to the online learning, NRAS approached experts in different exercise and PA fields, some of whom had RA themselves, to provide supplemental 15-minute video sessions to run alongside the module. Results The Module launched end of June 2023 with five 15 minute ‘taster’ videos on different forms of exercise appropriately adapted for a broad spectrum of people with IA. These taster sessions can be done safely, seated or standing, and used as ad hoc routines or as regular daily workout, increasing the repetitions as strength and ability increases. Over 3,500 people are registered to SMILE-RA, and, amongst other beneficial results, a survey has shown that 84% of users would recommend SMILE to another person. An HCP, in recommending this resource to colleagues, stated that this exercise module “will revolutionise your consults on exercise in RA.” Conclusion The “PA and Exercise” module can be used to support busy rheumatology professionals by recommending this free resource to their patients and in educating themselves to gain confidence in how to advise patients in this crucial and often overlooked area. Disclosure A.M. Bosworth: None. W.J. Gregory: Honoraria; W.G. has received honoraria for speakers and advisory board roles from Abbive, Novartis, Pfizer and UCB.

中文翻译:

P036 缺少重要步骤:为什么我的风湿病团队从不和我谈论运动?

背景/目标 英国风湿病学服务捉襟见肘。患者发起的随访的推出以及工作计划/诊所模板的压力意味着炎症性关节炎 (IA) 患者与风湿病团队相处的时间可能会减少。对 IA 患者进行护理的一个重要但不足的方面是使他们能够充分了解自己的疾病,并培养他们有效应对其实际、身体和心理影响的能力。 IA 的自我管理能力是药物治疗之外护理的重要组成部分,但实施自我管理教育存在障碍。调查显示,风湿病医疗保健从业者 (HCP) 不知道如何最好地支持患者变得更加活跃。研究表明,患有 IA 的人在进行定期体力活动 (PA) 或锻炼时面临多重障碍,包括身体限制、活动能力下降、疲劳、缺乏信心和不知道该做什么、害怕尴尬、受伤或使症状恶化,缺乏专业投入、建议和资源、设施不便和财务成本。方法 为了解决 IA 患者的这些问题,国家类风湿关节炎协会 (NRAS) 与 PA 和运动领域的专家合作,创建了一个关于该主题的模块,并将其包含在他们的电子学习计划 SMILE-RA 中。该模块包括: • 研究背后的科学依据 • 物理治疗师(包括专业风湿病理疗师和社区理疗师)的作用 • 锻炼的障碍和促进因素 • 目标设定 • 锻炼类型 • RA 患者受锻炼 NRAS 启发的故事希望为那些因行动不便/功能丧失而缺乏锻炼信心而难以锻炼的人们提供免费资源。除了在线学习之外,NRAS 还联系了不同运动和 PA 领域的专家(其中一些专家本身就拥有 RA),以提供与该模块一起运行的 15 分钟补充视频课程。结果 该模块于 2023 年 6 月底推出,包含五个 15 分钟的“品尝”视频,内容涉及不同形式的锻炼,适合广泛的 IA 患者。这些品尝课程可以安全地进行,可以坐着或站着,也可以作为临时例程或日常锻炼,随着力量和能力的增强而增加重复次数。超过 3,500 人注册了 SMILE-RA,除其他有益结果外,一项调查显示 84% 的用户会向其他人推荐 SMILE。一位 HCP 在向同事推荐该资源时表示,该练习模块“将彻底改变您对 RA 运动的咨询。”结论 “PA 和锻炼”模块可用于支持忙碌的风湿病专业人士,向患者推荐这种免费资源,并自我教育以获取如何在这一关键且经常被忽视的领域为患者提供建议的信心。披露 AM Bosworth:无。 W.J. Gregory:酬金; WG 已获得 Abbive、诺华、辉瑞和 UCB 为演讲者和顾问委员会角色提供的酬金。
更新日期:2024-04-24
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