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Transitioning from pediatric to adult-oriented healthcare in rheumatology: the pediatric side of the coin
Rheumatology ( IF 5.5 ) Pub Date : 2024-05-06 , DOI: 10.1093/rheumatology/keae254
Ezgi Deniz Batu 1 , Zeynep Balik 1 , Seher Sener 1 , Emil Aliyev 1 , Yagmur Bayindir 1 , Veysel Cam 1 , Muserref Kasap Cuceoglu 1 , Ummusen Kaya Akca 1 , Levent Kilic 2 , Ozge Basaran 1 , Yelda Bilginer 1 , Sule Apras Bilgen 2 , Seza Ozen 1
Affiliation  

Objectives The transition of adolescents and young adults (AYAs) from pediatric to adult-oriented healthcare may be affected by many factors, including the personal and cultural settings. We aimed to analyze the transition readiness and the factors affecting the transition success in rheumatology. Methods Patients older than 12 years were included in this prospective study. All filled out the Transition Readiness Assessment Questionnaire (TRAQ) 5.0. AYAs were phone-interviewed after their transfer to adult-oriented healthcare. Drug adherence was evaluated with 4-item Morisky Medication Adherence Scale (MMAS-4). AYAs rated their transitional care experience with visual analogue scale (VAS 0–10; 0, the worst; 10, the best). Results A total of 504 TRAQs were filled out by 406 patients (F/M = 1.5). The total TRAQ score was positively correlated with age and higher in the forms filled out by girls than boys (4.2 vs 4.0, respectively; p= 0.005). The transition was successful for 78 (83.9%) out of 93 patients transferred to adult-oriented healthcare. The VAS for the transition process was lower and the post-transfer MMAS-4 score was worse (8 vs 9, p= 0.030 and 3 vs 4, p= 0.020; respectively) in patients whose transition was not successful when compared with the successfully-transitioned ones. The best-performing TRAQ cut-off value was >4.0 for predicting transfer readiness in rheumatology. Conclusion A TRAQ score of > 4 could be used while deciding about the transfer readiness of AYAs in rheumatology. Improving the AYAs’ experience of the transition process and closely monitoring medication adherence during transition are essential for a successful transition.

中文翻译:

风湿病从儿科医疗保健转向成人医疗保健:儿科方面的转变

目标 青少年和年轻人 (AYAs) 从儿科医疗保健向成人医疗保健的转变可能会受到许多因素的影响,包括个人和文化环境。我们的目的是分析风湿病学的过渡准备情况以及影响过渡成功的因素。方法 这项前瞻性研究纳入了 12 岁以上的患者。所有人都填写了过渡准备评估问卷 (TRAQ) 5.0。 AYA 在转入成人医疗保健机构后接受了电话采访。采用 4 项 Morisky 药物依从量表 (MMAS-4) 评估药物依从性。 AYA 使用视觉模拟量表(VAS 0-10;0,最差;10,最好)评估他们的过渡护理体验。结果 406 名患者总共填写了 504 份 TRAQ(F/M = 1.5)。 TRAQ 总分与年龄呈正相关,女孩填写的表格得分高于男孩(分别为 4.2 和 4.0;p=0.005)。 93 名患者中,有 78 名 (83.9%) 转入成人医疗保健,过渡成功。与成功过渡的患者相比,过渡不成功的患者过渡过程的 VAS 较低,移植后 MMAS-4 评分较差(分别为 8 vs 9,p= 0.030 和 3 vs 4,p= 0.020) - 过渡的。用于预测风湿病转移准备情况的最佳表现TRAQ截止值>4.0。结论 TRAQ评分> 4 可用于决定风湿病学中 AYA 的转移准备情况。改善 AYA 在过渡过程中的经验并密切监测过渡期间的药物依从性对于成功过渡至关重要。
更新日期:2024-05-06
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